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Treatment of Down's syndrome

There is no cure for Down’s Syndrome but a range of treatment and support is available to improve the quality of life of people with the condition. Many people with Down’s Syndrome benefit from specialised education, occupational therapy, physiotherapy, speech therapy and a dietician.

Tests for baby and beyond

If your baby is diagnosed with Down’s syndrome they will have a physical examination at birth, another at six weeks old and then annually. Part of the newborn examination will include an echocardiogram, when the heart and blood vessels are examined. This is because children with Down’s Syndrome are more likely to have heart defects.

It is important that your child has regular checks to monitor growth and to detect health problems early. Such problems may do more damage if they are untreated.

Children with Down’s Syndrome should have regular vision and hearing tests. This is because they are at higher risk of long sightedness (hypermetropia) and short-sightedness (myopia), and glue ear which can result in hearing loss.

They should also have a thyroid test every year and a dental check at least every two years. This is particularly important for children with heart abnormalities because a tooth infection can cause bacteria to grow in the heart.

Children with Down’s Syndrome should have the usual childhood immunisations (see Immunisation topic) and may be offered the flu jab as well.

Leading a fulfilling life

Children with Down’s Syndrome can benefit from specialised educational programmes and therapy as well as physiotherapy, occupational therapy and speech therapy. Some may thrive better in a specialised school and some in a mainstream school. Encourage your child and let them do things for themselves. With appropriate education, therapy, and social support, the majority of people with Down syndrome can lead fulfilling and productive lives. They can live independently and have personal relationships.

Some children may need constant care and support from family or carers. For advice, guidance and support see your midwives, social worker, counsellor or health visitor. You can also attend special health and development clinics. Parents of children with Down’s Syndrome may like to join a parents’ group so they can talk to other parents, share experiences and get support.